In The News


International SSRF Breakthrough Grant project: REPORT PUBLISHED

It has been a long wait, but the first report about the International SSRF Breakthrough Grant project has been published!

This grant was created in 2014 to develop a coordinated research program in Synovial Sarcoma by taking advantage of the resources and research capacity of an international team of clinician investigators and scientists.

The grant was co-funded by us, the Synovial Sarcoma Research Foundation, and the Liddy Shriver Sarcoma Initiative, each of which provided $125,000 in support. The two organizations are working together to initiate and support high-quality basic and translational research in synovial sarcoma.

The International SSRF Breakthrough Grant synovial sarcoma team has been working together for more than two years. The team is comprised of researchers from the Memorial Sloan Kettering Cancer Center in New York led by Drs. Marc Ladanyi and Scott Lowe, from the University of British Columbia in Vancouver led by Dr. Torsten Nielsen, and from Radboud University Medical Center in Nijmegen, Netherlands, led by Dr. Diederik de Bruijn.

The team met face-to-face in New York (August 2014), Philadelphia (April 2015), Salt Lake City (November 2015) and will meet in Lisbon (November 2016), and over the course of the ICG granting period has recruited additional expertise in the field through collaborations with Dr. Kevin Jones (Huntsman Cancer Institute, Salt Lake City) and Dr. Bertha Brodin (Karolinska Institutet, Stockholm). The research program has been able to achieve goal one, make significant progress on goal two after initial studies showed technical problems, and shifted goal three toward a more feasible murine system, while also branching into new research directions as novel findings and opportunities emerged.

Together, we are making a difference!

You can read the report now using the following link:

OCTOBER 18TH, 2014

Kick-off meeting Scientific Advisory Board in Berlin

The Scientific Advisory Board had its kick-off meeting in Berlin during the CTOS. It was agreed that in 2015 the Scientific Advisory Board would draft a vision document stating the vision of SSRF on the worldwide research into synovial sarcoma over the next ten years. This vision will provide the guidelines for future grant applications and peer reviews. It will also be dynamic and will be translated into three year objectives in a comprehensive organizational plan for the foundation by the Board.

The expert researchers from the Scientific Advisory Board were very enthusiastic about the ten year commitment that the foundation made. Furthermore, they agreed that they should seek other experts in the field of synovial sarcoma as well to make sure that the vision document represents the latest insights into the direction of the dedicated research.

The brainstorm and discussion that took place addressed sharing of knowledge using technological platforms, sharing of results, working together in virtual laboratories. We also discussed the possibility of worldwide trials that have the scale to really have impact on the improvement of treatment for patients.

David Thomas proposed to meet again in 2015 to present the vision document and the plan and to agree on the way forward.

Koen Jansen added that the foundation hoped to fund many promising breakthrough projects towards 2024. Fundraising or donations should come from the community of people that are directly or indirectly confronted with synovial sarcoma. He said: “If only the doctors treating the patients would make family members and friends or colleagues of patients aware of the objectives and possibilities of the Synovial Sarcoma Research Foundation. Then, if for every one synovial sarcoma patient worldwide, only ten of those people could contribute on average a $100, there would be a budget of millions per year.”

The positive energy and enthusiastic discussion about our vision made that we did not even have the lunch that was scheduled. At the end of the meeting we realized that we ordered... two bottles of water.

OCTOBER 15-19, 2014

Representatives SSRF visit the CTOS meeting in Berlin

During the CTOS meeting in berlin from 15 to 19 October 2014 Koen and Mark Jansen talked to many experts and were invited to the EUROSARC meeting.

This year, the Synovial Sarcoma was "sarcoma of the year". There were many presentations and poster sessions specifically about the current research into synovial sarcoma.

MAY 1ST, 2014


The Synovial Sarcoma Research Foundation and the Liddy Shriver Sarcoma Initiative are pleased to award a $250,000 International Collaborative Grant for synovial sarcoma research. The research project, which focuses on understanding the development of the disease, is a global effort of five investigators in Canada, the Netherlands and the United States.

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